As we observe Sickle Cell Awareness Month this September, it is crucial to emphasize the importance of raising awareness and advancing research to support the millions affected by sickle cell disease (SCD). This genetic blood disorder has a significant impact worldwide, particularly within the African American community. It is essential that we deepen our collective understanding and strengthen our commitment to improving the lives of those living with this challenging condition.
Understanding Sickle Cell Disease
Sickle cell disease is marked by the production of abnormal hemoglobin, which causes red blood cells to deform into a sickle shape. These misshapen cells can obstruct blood flow, leading to severe pain, infections, and life-threatening complications such as stroke and organ damage. Despite ongoing advancements in treatment, individuals with SCD continue to face significant challenges, including limited access to comprehensive care and persistent stigma.
At WashU Department of Medicine, our mission is to lead the charge in addressing these challenges through rigorous research and innovative care. From exploring gene therapies to developing more effective pain management strategies, our work is focused on translating research discoveries into real-world solutions that improve patient outcomes.
A testament to this commitment is the recent introduction of the 12th sickle cell treatment center in the country at Barnes-Jewish Hospital. This center is revolutionizing healthcare for the underrepresented community affected by the disease. The 1,700-square-foot treatment center is located on the third floor of the Center for Advanced Medicine (CAM) on the academic campus.
It is essential for patients with sickle cell disease to receive care in a setting with physicians specialized in treating this condition. We offer dedicated social work support, physical therapy, and a nurse coordinator for our patients. Additionally, we are the only center within a 300-mile radius providing comprehensive care for sickle cell disease.
Sana Saif Ur Rehman, MD
Associate Professor, Director of the BJC Sickle Cell Treatment Center
Advocacy and Public Education
Sickle Cell Awareness Month provides a vital opportunity to amplify the conversation around this disease and underscore the urgent need for continued research and public education. We encourage all members of our community to actively participate in this effort—whether by supporting research initiatives, engaging in educational outreach, or fostering a more informed and compassionate approach to patient care.
This month is also a time to recognize the challenges faced by individuals with SCD and to advocate for their rights and well-being. By raising awareness, promoting research, and providing robust support, we can work towards a future where individuals with SCD can live fulfilling and healthy lives.
Source: Sickle cell information center, 2024